Important Survey from NVA! June 11, 2013
Clinical Trial Seeking Women in AZ, CA, DC, PA & NY September 22, 2012
A Randomized, Double-Blind, Placebo-Controlled Research Study to Evaluate a
Novel Vulvar Cream Containing Cutaneous Lysate for Provoked Vestibulodynia
Women between the ages of 20 and 55 who are not pregnant or breastfeeding may be eligible to participate in this study. Women must experience pain with tampon insertion and/or intercourse that affects their sexual function, and practice a reliable form of birth control. Those with a history of diabetes, heart disease, HIV, hepatitis B or C, or menopause are not eligible. Women must be able to attend two clinic visits, plus two telephone interviews, and complete all questionnaires in English over the course of the 12-week study. The study cream and other related study tests will be provided at no cost.
The Centers for Vulvovaginal Disorders (Washington, DC)
Contact Hillary Tolson
Principal Investigator: Andrew T. Goldstein, MD
Pelvic & Sexual Health Institute (Philadelphia, PA)
Contact Elizabeth Elias, CCRC
Principal Investigator: Kristene Whitmore, MD
Co-Investigator: Susan Kellogg-Spadt, PhD, PA-C
San Diego Sexual Medicine (San Diego, CA)
Contact Margaret Carr
Principal Investigator: Irwin Goldstein, MD
Arizona Vulva Clinic (Phoenix, AZ)
Contact Gabrielle Rodriguez
Principal Investigator: Joseph Brooks, MD
New York Center for Women’s Health Research (New York, NY)
Contact Lauren Pellegrino, WHNP-BE
Principal Investigator: Kenneth A. Levey, MD
UCLA Brain Imaging Study June 12, 2012
UCLA Brain Imaging Study
Women between the ages of 18 and 55 who have been diagnosed with Provoked Vestibulodynia (formerly vulvar vestibulitis syndrome), or are experiencing chronic pain at the vaginal opening with/without intercourse may be eligible to participate in this study. Women must be right-handed and cannot be pregnant. Participation involves two visits over approximately 2-4 weeks. Dr. Emeran Mayer at the UCLA Center for Neurobiology of Stress (www.uclacns.org) will conduct brain imaging tests (fMRI) to understand how chronic vulvar pain may affect the brain’s activity and structure. Participants can earn up to $75 and will receive a picture of their brain.
For more information, please contact Dr. Andrea Rapkin (310-825-6963).
Ladies and VVS speak out! February 9, 2008
This is from NVA.org email that I received today:
Dear NVA Friend,
Producers at The Oprah Winfrey Show are working on a possible upcoming show on vulvodynia.
If you are a single woman in your 20s or 30s who is worried that you may not be able to get married or have children in the future because of your vulvodynia and/or a non-Caucasian women of any age who is willing to be on the show, as soon as possible, send an email to email@example.com with the following information:
– Summary of your history with vulvodynia, i.e., When were you diagnosed? How many doctors did you visit before receiving a correct diagnosis? Have any treatments helped you? Is your vulvodynia better, worse or the same?
– How has vulvodynia affected your ability to pursue a career and/or engage in social activities? How has vulvodynia affected your sex life, marriage or relationships?
– Contact information – phone number and email address
– Current photo (attachment)
– Statement that you give NVA permission to forward your contact information to producers at The Oprah Winfrey Show.
Please try to limit your summary to 1-2 paragraphs.
Thanks very much,
Associate Executive Director
National Vulvodynia Association
PO Box 4491
Silver Spring, MD 20914