Vulvar Vestibulitis Support Network

the chronicle of broken Vaginas, what we've done to try and fix them, and how we plan to save the World

Vulvodynia Treatment Registry Enrolling in Six States (from NVA) June 15, 2011

Filed under: Uncategorized — jul @ 9:13 am

Vulvodynia Treatment Registry Enrolling in Six States
Arkansas, Colorado, Ohio, Florida, Maryland, Washington DC

NVA funded the creation of the first Vulvodynia Treatment Registry because it is unacceptable for women not to have scientific information on which to base their treatment choices. We’ve expanded the Registry project to seven enrollment sites in six states: Arkansas, Colorado, Florida, Ohio, Maryland and Washington DC.

In addition to generating vital data on which treatments are most effective for different vulvodynia subtypes, your participation will help Registry investigators identify factors that can predict treatment success and guide the development of large controlled trials of promising therapies.

If you are between the ages of 20 and 45 and suffer from vulvodynia, you may be eligible to participate in this study. (We’ve also obtained a grant that will enable Registry providers to begin enrolling women over age 45 in mid-late summer!) The study does not provide free medical care and treatment. Participation is voluntary, does not include any experimentation and will not change your treatment recommendation.

To read more about the Registry project, please visit NVA’s web site.

To speak to a Registry coordinator about participating in the following states, contact:

Little Rock, Arkansas
Christina Hutchinson (501-686-6799,

Los Angeles, California
Coming Soon

Denver, Colorado
Jill Zika (303-602-9069)

Orlando, Florida (2 sites)
Lilia Portilla (407-303-2721,

Baltimore, Maryland
Gwen Monroe (443-632-0200)

Akron, Ohio
Sara-Jane Salstrom (330-375-4293,

Washington DC
Hillary Tolson (202-887-0568)


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s