Vulvar Vestibulitis Support Network

the chronicle of broken Vaginas, what we've done to try and fix them, and how we plan to save the World

A Great Way to Speak Out!!!! March 12, 2011

Filed under: Uncategorized — jul @ 8:33 pm

From: National Vulvodynia Association
Subject: Please Contact the IOM
Date: Friday, March 11, 2011, 12:32 PM

The Institute of Medicine, charged by the Secretary of Health and Human Services to conduct a consensus study of our country’s current state of pain research, medical management and education, is seeking comments from chronic pain sufferers and medical professionals who treat chronic pain disorders pertaining to:

(1) Barriers to medical care;

(2) Opportunities to improve pain care; and

(3) Groups that may not be adequately treated for pain.

We encourage you to submit a public statement by March 31st at: http://www.surveygizmo.com/s3/449095/Pain-Research-Public-Comment-Form. When doing so, please be sure to name the specific pain disorder(s), e.g., vulvodynia, that you suffer from and briefly summarize its impact on your health and quality of life.

If you live in Alabama, California, Connecticut, Maryland, Massachusetts, Michigan, Missouri, Nebraska, New York, North Carolina, Oregon, Pennsylvania or Washington, and you are willing to share your story and/or public comment with your local newspaper, please send an email to crystal@nva.org.

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