Vulvar Vestibulitis Support Network

the chronicle of broken Vaginas, what we've done to try and fix them, and how we plan to save the World

Orlando Vulvodynia Registry Sites Currently Enrolling Participants June 13, 2010

Filed under: Uncategorized — jul @ 7:33 pm

Orlando Vulvodynia Registry Sites Currently Enrolling Participants

In 2009, the NVA funded the first Vulvodynia Treatment Registry to gather data on the efficacy of different vulvodynia treatments. The aim of the Registry is to determine which treatments are most effective, identify factors that can predict success with a particular treatment, and help design large controlled trials of promising therapies.

If you suffer from vulvodynia, and are between the ages of 20 and 45, you may be eligible to participate in this study. Florida Hospital and the University of Central Florida in Orlando are currently enrolling participants. Participation is voluntary, does not include any experimentation and will not change your treatment recommendation. You would be given a thorough gynecological examination, and after the investigators determine the most appropriate course of treatment, you would complete questionnaires so they can determine its effectiveness. Two months after starting a new treatment(s), you would undergo a second gynecological examination to measure your progress.

This study does not provide free medical care and treatment.

To read more about the Registry project and its investigators, please visit NVA’s web site. To speak to the Registry’s coordinator, or to participate, please contact Lilia Portilla at 407-303-2721 or

If you are a health care provider and would like to obtain Registry flyers to distribute to your patients, please contact Ms. Portilla.


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